Ablation

Progress, Progress, and More Progress

nancyaarsvold

CaringBridge journal entry by Stephanie Fay

Good Evening, Everyone,

Nancy came off the ventilator by mid-afternoon.  She’s doing great with that — and her voice is nearly back to normal already.  About an hour ago they removed the balloon pump supporting her heart.  Also flying colors with that!  She’ll need to rest motionless and easy on her back for 6 hours while the insertion site heals.  Tomorrow morning, she’ll be able to get out of bed.  Yay!  Due to her remarkable recovery, she only spent around 60 hours on the ventilator — her shortest stint ever with that ol’ machine, as best I recall.

From what I’ve gleaned from the doctors so far today, she will likely remain in the cardiac ICU until at least Tuesday.  The Monday ablation is now up in the air.  The electrophysiologists are concerned they won’t be able to locate the area where the PVC originates because, yet again, it has completely disappeared.   And there are risks in trying to induce the PVCs, they say, including inadvertently starting another “storm.”  Ablation or otherwise, Nancy will get a NEW Fiona, most likely on Tuesday.  The battery life on Fiona the Defibrillator is under 6 months now.  High time for a new one!  And she will upgrade to one with two leads into the heart instead of the single lead she has now.  Both Nancy and I are relieved the new ICD will have several fresh years of battery life.  But will this one have a NEW name???  How about some suggestions, all you clever folks out there?  🙂

That’s it from here at the hospital this evening.  Nancy is just winding up a sweet phone conversation with her sweet Dad.  She’s off all pain medications now and having a few vivid though happy dreams when she dozes off.   I’m asking the universe and all interested parties for a calm and restful night of sleep for my sweet bride tonight.

And the same to all of you out there following along.  Nancy wants me to read to her from these Caring Bridge posts now.  A fine and fun way to bring this astounding day to a calm close. 

Much love from Nancy and Stephanie

____________________

Nancy M. | Dec 15, 2019
So happy to hear that Nancy is doing so well! What a time she has had. She has a great support system with you and all of her family surrounding her with love. What an important part of recovery: Being surrounded by loved ones. Know that Chris and I are keeping you in our hearts. 

Su S. | Dec 15, 2019
Here’s a name suggestion: Cordelia. Cordelia is a feminine given name. … The name is of uncertain origin. It is popularly associated with Latin cor (genitive cordis) “heart”, and has also been linked with the Welsh name Creiddylad, allegedly meaning “jewel of the sea”, but it may derive from the French coeur de lion “heart of a lion”. 

Michelle F. |Dec 15, 2019
So glad to hear she is off the ventilator; those look scary, but of course we are grateful for such equipment. A name that comes to mind for the new one is Frida. 

José M. | Dec 14, 2019
So happy to hear that progress is being made. My thoughts are with you both everyday for a speedy, healthy recovery. Sending you both virtual, energy-filled hugs!

Colleen A. | Dec 14, 2019
Fabulous news!!!

Hanna E. | Dec 14, 2019
P.S. Regarding the new name: Panacea, goddess of the cure by medicines and salves. Love,Hanna

Amy B. | Dec 14, 2019
Thanks for these updates. I’m so glad Nancy’s situation continues to improve. Thinking of you both and sending love from Northfield. Regarding the new name: Maybe something Norse this time around…How about Frigg?

Patricia S. | Dec 14, 2019
Such good news, you two!! The prayers and good vibes are still coming your way. They’re sent with bunches of love and hugs from us!! 💕💕💕 

Susan D. | Dec 14, 2019
So relieved and thrilled to hear this good news. Very happy for you both. Every day I ask the Universe to guide you and keep you both safe. I am kind of liking Scarlett for a name. Some fierce beauties did that name proud. Sending all love to you both, always.

Barbara T. | Dec 14, 2019
Nancy you are one strong woman with a legion of followers. You are missing another arctic blast. Hope they find the spot Fiona doesn’t like. I vote for Charlotte, one determined heroine.

Debra T. | Dec 14, 2019
I’m glad Nancy is improving. And much faster than anticipated? How great! Thanks for the updates. As far as a name for the new Fiona, in keeping with the hard F sound, perhaps Pheobe. Or, some dictionaries say a meaning of Cora is “heart”. Greetings to you & Nancy. 🧡💜💛💚💙

Kari O | Dec 14, 2019
Sean let me know what was going on, so I read up on the latest and greatest adventures. I am so sorry that you are going through this. It sounds like things are heading exactly where they need to go, which is back to a normal and healthy Nancy with a device that is doing its job calmly and quietly in the background. As you well know, Greg and I are also members of the club. It sucks. You never know when it will happen or even if it will happen. And in your case, in what state or country it will happen! Reading your posts, Steph, it reminded me so much of all the positives. It reminded me that you can find joy anywhere if you have the right people with you. And that you can have joy in life despite not knowing what happens next. Thank you so much for that! Much love and hugs from Kari, Greg, and twins
PS, Greg will no doubt be formulating a sassy comment once he gets up to speed on the latest posts, stay tuned!

Vicki O. | Dec 14, 2019
Good Morning, Great to hear of Nancy’s progress. You’re both in my thoughts and prayers.

Deborah P. | Dec 14, 2019
Good Morning you two! Such impressive progress. I’m grateful for your spunk and resilience. I’m thinking the name RITA MAE might fit. As in Rita Mae Brown (strong, smart, funny, tough and won’t take any crap. ) I’m retreating in silence today at Shambala Center. You can bet I will hold you as my dear one. 🙏💕

Jeanne E. | Dec 14, 2019
We are so glad to hear things are progressing so well and so quickly. How nice that “Fiona” gets to retire after time well-served.
Jeanne and Jerry

Pamela I. | Dec 14, 2019
My dear Nancy, you really are a Wonder Woman and I couldn’t think of a better name than Xena for your new device. But it will be fun to hear other suggestions and final answer. Keep moving forward; won’t walking feel marvelous!! Stephanie thanks for the prompt updates, I eagerly anticipate reading these and wrapping prayers around your words. Sending my love to you both.

Kari D. | Dec 14, 2019
Yay! Thanks for the update!

Betsy E. | Dec 14, 2019
For the new defibrillator, how about Xena, as in Xena, Warrior Princess? Because that is the first thing that came to mind when I thought of Nancy and her journey with her heart issues. Love to you both, Betsy

Mary C. | Dec 14, 2019
So happy to hear the good news!

Ann D. | Dec 14, 2019
Atta way, Nancy!! Show ’em how it’s done! So happy that you are making great progress. You’ll feel so good when you can get up and walk around again! No running! ♥️😊🤗

Maria K. | Dec 14, 2019
Way to go, Nancy! Team KellyLargenKelvakis is rooting for you!

Lynn K. | Dec 14, 2019
Great news. Thank you.

Liv D. | Dec 14, 2019
So happy to read the good news! How about Flo as the new name?

Denise S. | Dec 14, 2019
Yay, all this news sounds good. Will keep up the prayers for a smooth ICD update. Rest and get stronger.

Terry K. | Dec 13, 2019
Hi Nancy and Stephanie. So happy you are improving! You are so brave ! You are so often in our thoughts and prayers and conversations and you have many cousins cheering you on! You are very much loved!
❤️Terry

Sandi P. | Dec 13, 2019
She’s a tough nut alright! So glad things are going well and she is on the road to recovery. We’ll continue to keep you both in our thoughts and prayers.

Recovery Road

nancyaarsvold

CaringBridge journal entry by Stephanie Fay

Hello again all,

Nancy’s tour of large American city Cardiac ICUs continues…  and she, once again, is on the her remarkable road to recovery.  Although she is still supported by the balloon pump in her heart and the ventilator, her trajectory today, according to the various doctors rounding on her and her main nurse (Erin), has been only positive.

She’s been busy writing to all of us here on a small whiteboard, her clever sense of humor and pure joy in life visibly intact.  It’s a sight to behold!

Here’s the current plan.  The electrophysiocardiologist (EP doc) wants to do an ablation on Monday to eliminate the PVC that is the precursor to Nancy’s device storms.  His lab is over at the main hospital at the University of WASHINGTON, and so the plan is to move her from Harborview over to that hospital later today or tomorrow.  Meanwhile, Nancy’s main job is to continue her recovery.  So one step at a time here.  But things are looking up, and I’m feeling quite positive and hopeful.  

Thanks for all of your sweet and supportive replies!  Once she’s more alert, we will enjoy reading your responses together.  Nancy will so enjoy reading them (and replying!) when she’s able to use her computer again.    

Tina and Jess are here again today, of course.  Nancy’s brother Jeff drove up from southern Washington and stayed with Nancy at the hospital overnight last night.  My sister Elaine and brother Bradley flew in from Arizona last night as well.  And Andreas and Greta (the newlyweds!) flew in this morning.  And Nancy’s longtime friend Kari Lipke paid an afternoon visit as well.  All such wonderful people who show up for us over and over again.  We are grateful!!!

Much love to all!   Nancy & Stephanie

____________________

Joan L. | Dec 13, 2019
We met at the wedding last weekend (I am Chrissie’s high school friend from So CA), and are all on the Nancy team! Lots of prayers and good wishes for restored health and good healing are being sent toward Seattle, Nancy, and hugs all around for your family and loved ones there supporting you. ❤️

Mark & Barb E. | Dec 13, 2019
Sorry to hear the trouble you’re having but glad things are improving. Sounds like you’ll be out of the hospital soon. Hugs!

Denise S. | Dec 13, 2019
Sending prayers and thinking of you. Much love to you both.

Kelly K. | Dec 13, 2019
So glad to her your on your way to recovery Nancy! Keep up the good work and I will continue to send you healing thoughts, prayers, and hugs.

Susan H. | Dec 13, 2019
Much relieved about Nancy’s progress. Love and prayers to you both.

Kim H. | Dec 13, 2019
Great news! You all will remain in my thoughts and prayers for a great recovery!

Jonathan O | Dec 13, 2019
So glad that Nancy is recovering, that you are surrounded by love, and that you are in the care of excellent professionals. Sending love and thoughts of healing. May the procedure go smoothly and effectively. Much love!

Nancy H. | Dec 13, 2019
Tremendous news! Continue to heal and be well. Hugs to both of you – love Nancy and Jody

Judith T. | Dec 13, 2019
So glad to hear that you have so much love and support there for you both! Sending virtual hugs and prayers!

Jeanne E. | Dec 13, 2019
Thank you so much for the beautifully written update. Everything is so well-explained, with warmth and gratefulness in every word. How can I will Nancy strength, patience and humor when she has so much of her own?

I met Nancy in the 1980s and early ‘90s at St. Olaf College. My sons, Jacob and Noah, were born at about the same time as Andreas and Tina. I remember what they felt like in my arms. Though we moved to Philadelphia (Go Eagles!) and now Boston, we cherished Nancy’s Xmas letters and admired her pioneering work on Norwegian language textbooks. Through the years, we enjoyed reading FB updates too. Her humor, gentle wisdom, kindness, and love of family were always evident.

In a kind of coincidence, Nancy had her first heart incident a few months after I had one. (A sudden and traumatic—to me—need for an aortal valve replacement.) When I read those 2016 CaringBridge reports of her recovery, as beautifully written as these, I knew it was the same Nancy I had known. You are blessed to have her and she, to have all of you.

Right now, I can hear the happy and kindly laugh, which made our every Northfield, MN gathering a better one, just as I see her beating every last one of us at Scrabble. These sometimes happened concurrently. Did I mention we also admired her brains?

Love,
Jeanne (and Jerry), Jacob & Noah

Kari L. | Dec 12, 2019
So loved seeing you today, Nancy — especially the twinkle in your eye. ❤️

Eric S. | Dec 12, 2019
Awesome news. Thanks for keeping us updated!

Liz H. | Dec 12, 2019
Good, good news. Nancy, you are resilient! You are loved. ♥️

Ann D. | Dec 12, 2019
Very encouraging news 😊. Sending love and healing thoughts.

Stephanie F. | Dec 12, 2019
U of Washington is where she is moving, NOT Minnesota.

Su S. | Dec 12, 2019
Hi Steph- thanks for the good news! I’m really glad you and Nancy are surrounded by family and friends. More prayers and healing thoughts on the wing.

Andrea G. | Dec 12, 2019
Love to you both. Praying for Nancy’s road to recovery. I am thinking about you so much and wish I could give you both a huge hug… sending them from afar. Love, Andrea ❤️

Vicki O. | Dec 12, 2019
Hi Steph, sorry to hear about this. We just got back to AZ. The best to you and Nancy. Keep us posted.

Maria K. | Dec 12, 2019
I can visualize Nancy writing little quips on that white board. Her bravery (and Stephanie’s!) continues to amaze me. If you have to travel a rocky road, how wonderful to have your team fall in with back up and so much love. You got this, Nancy, and we gots you!♡♡♡

Kit H. | Dec 12, 2019
I’m so relieved to hear this. I’ve been thinking about all of you and sending my love. Kit

Susan D. | Dec 12, 2019
My goodness, dear friends. Soon you will be enjoying the sun in southern California I hope that day comes quickly. You are both in my prayers and in my thoughts. with love always, susan

Michelle F. | Dec 12, 2019
Does this mean you are flying to MN and when? Thank you for keeping us updated. You have both been on my mind and heart all day! Love you!

Liv D. | Dec 12, 2019
Absolutely delighted about the positive news!

Robin K. | Dec 12, 2019
Such positive news. Hoping the progress continues. Love you both tons!!!

Pamela I. | Dec 12, 2019
Really good news. Give Nancy and yourself a loving hug from me. That woman is a wonder! BTB Claire’s “train car” for a class project had the Wonder Woman logo drawn on it. The train to recovery.

Mary Ellen E. | Dec 12, 2019
You all are in my thoughts and prayers. Take care Nancy.

Hanna E. | Dec 12, 2019
Thank you for the positive update! I am happy to hear she is in good spirits, and will continue to send positive healing thoughts. Love to you both!

Update from a snowy, blowy Minnesota

nancyaarsvold

Journal entry by Stephanie Fay

Hello again, folks —

Yes, “blowy” is an actual word — I just looked it up!  🙂

Nancy continues to do well with her recovery — lots of walks to regain her strength and getting out and about on errands, appointments and so forth, too.

Last week we knew Nancy had appointments at the U of M on Monday and Wednesday but we actually went over there for 4 days in a row — Monday thru Thursday. Overall, every appointment was heartening. Such compassionate cardiac doctors and device nurses.  Here are a few of the things we learned:

  • Nancy had an echocardiogram to check on the strength of her heart both generally and after sustaining those 52 Fiona shocks. Her ejection fraction is 65% — this is excellent! Nancy does not have heart failure.  Nor does she have CAD (coronary artery disease). Nancy’s heart issues are purely electrical in nature. This why her original event was called a sudden cardiac arrest, not a heart attack (or MI). Her “plumbing” is good! This heart issue remains purely “electrical.”
  • Nancy is taking a pretty heavy duty antiarrythmia drug called Amiodarone. She was on it during her first hospital stay, but they weaned her off it before discharge. This time she remained on the drug at discharge. Her electrophysiologist here, Dr Roukoz, wants to wean her off it again slowly — over a period of months. This drug has some side effects, so it’s not terrific for long-term use, especially in someone as young as Nancy, he said. Meanwhile, he ran some baseline blood tests, and Nancy had a breathing test, too, to establish a baseline for her lungs. So they will monitor all that closely.
  • The PVC (premature ventricular contraction) that led to all the ventricular tachycardia (which led to the Fiona firings) is now only present in Nancy’s heart rhythm ONCE per hour on average. This is a good thing! However, this also means that having an ablation to try to stop this particular PVC is not a possibility. It has to be present in order to ablate it. Dr Roukoz said doing the procedure with those few PVCs would take hours and hours! Meanwhile, he is having Nancy wear a fancy, newer type of Holter device for 48 hours to gather all the information he can about her heart and this particular PVC.
  • Dr Roukoz talked to us extensively about potassium. Nancy’s potassium and magnesium were very low at hospital admission for both cardiac events. He wants her to continue to take a potassium supplement and to eat a potassium-rich diet and stay well hydrated with water and electrolyte drinks. He said that some people are very sensitive to low potassium, and that likely Nancy is. And he wants to reduce this “trigger” to her PVCs as much as possible.
  • Dr Roukoz has advised no travel for at least 3 months! Nancy may get a special dispensation to fly out to Portland for her Dad’s 90th birthday party in June, depending on how she’s feeling and how things are going. Roukoz especially doesn’t want her to travel after any Amiodarone reductions. The next step down of that won’t be until mid-July. So, there’s a good chance we won’t be leaving the state of Minnesota for much of 2018, which, aside from one summer trip to Norway and a few trips to see family that we’ve had to postpone, is okay with us.
  • Nancy and I are both tremendously relieved to be home, back in the capable and compassionate hands of her cardiac caregivers, and just 7 miles away from the University of Minnesota Hospital!
  • Both Dr Roukoz and Dr Bartos (her regular cardiologist) indicated that Nancy’s long-term prognosis is very good. They expect her to make a full recovery and, over a period of months, get back to her full and active life.
  • In the short term, both Nancy and I remain quite anxious about another Fiona storm coming over the horizon. But we (and the docs!) know a lot more about her storms now. Dr Roukoz said he would recommend intubation and sedation as soon as possible after the very first shock if it were to happen again. He and Bartos feel that part of her storm cycle was the normal surge of adrenaline causing additional heart irritability. So sedation would interrupt that cycle quickly — and also give Nancy relief from Fiona.
  • Nancy’s also taking a beta blocker called Metoprolol. This is a very common drug for heart issues. They doubled her dose during and after this hospital stay, and it appears that its side affects (lightheadedness from lowered heart rate and low blood pressure) may be affecting Nancy a few times per 24 hours. Dr Roukoz said that he could lower that dose as well if she continues to have issues. It’s certainly affecting her quality of life at the moment and, since feeling lightheaded and nauseous was a precursor to both her big events, it’s just generally alarming.
  • Folks often have a PTSD reaction after their ICDs (Fiona) go off, even after just 1 firing! So Nancy is going to talk to a health counselor about that and other concerns beginning next week — with a fellow who works right out of the cardiac unit there at the clinic. Nancy says she has a few trust issues to work out with Fiona.
  • I plan to follow up with a Health Partners psychologist who uses EMDR to help folks with traumatic experiences. I went to see him a handful of times after Nancy’s initial cardiac arrest. Beyond the EMDR process, I found it really helpful to talk to him in minute detail about the morning of Nancy’s arrest — what I saw, did, felt, etc. I imagine we will approach Nancy’s Fiona storm in much that same way.
  • Nancy and I are so relieved to be home. Did I mention that already? Neither Nancy nor I are ready for Nancy to be by herself yet so we’ve arranged for a friend to spend time with her on several mornings each week while I get a workout in and run errands.

We want to thank you all for your outpouring of support. We’ve had a few spontaneous soup and salad deliveries — thank you for those! For the most part, we’re up and firing on all daily life fronts. If we need anything, we will definitely ask! Over the coming weeks, I know Nancy will want to see many of you locals face to face. As will I!

Like all of you, I’m grateful my Nancy is alive.  She is a medical miracle with a miraculous will to live.


Patricia Sween|Apr 14, 2018
We’re so pleased that Nancy is on a good path to recovery. Your thorough report was most appreciated, Stephanie. You both are doing the right things. Love and hugs to you!

susan Donohue|Apr 14, 2018
Oh, Stephanie, what a thorough report of such a complex condition. Trying to take it all in and understand. The important thing is that you are on top of this with amazing doctors you trust who are taking all the right paths to manage this condition. Sounds like all his advice will help. Could it be so simple as potassium levels?? The next few months will show more. Meanwhile, a good idea to talk to therapists to help cope with the events. Very traumatic. But so much promise ahead! Thank you, thank you!

Barbara Taylor|Apr 14, 2018
Thank you for a thorough update. I am available for respite visits Monday, Wednesday and Friday. Feel free to call. Good to see you both at the rec center Friday. Know the outlook is good as you are in good hands and do as told.

Margaret O|Apr 14, 2018
I really appreciate being able to know all the details–and am so relieved that Nancy’s prognosis is positive! It was great to see you guys in Northfield the other day. Love you both!

Claudia Gordon|Apr 14, 2018
I am sitting in my sunroom this morning in St. Paul, trying to bask in some rays of sunshine???……BUT…..your note brought the ‘sunbeams’ to me! What a beautiful blast! Spring WILL come after all and Nancy and Stephanie will make it happen!

Gail Klemm|Apr 14, 2018
Such an uplifting and detailed report – I am one who always appreciates information, so thank you, Stephanie! I have been thinking of Nancy and you, hoping the trip home went smoothly, and that everything was continuing to improve. (Apparently, all but the weather!) Love and peace to both of you.

Lori Ellertson|Apr 14, 2018
Thank you Steph for a detailed explanation of what you and Nancy went through! Love you both to the Moon and back and your in my constant thoughts and pleadings for good health from here on out!

Terry Kenck|Apr 14, 2018
Thinking of Nancy so often and praying for a complete recovery . Thank you for the detailed report, Stephanie….what a blessing you are to Nancy. Really words seem inadequate to express how grateful I feel that Nancy is so well, despite the big challenges that remain. I am on my way to take care of my 20 month old amazing granddaughter…as Nancy knows…also named Fiona! 😃 Maybe the name Fiona means BLESSING! Wishing you joy! Terry

Kari Lipke|Apr 14, 2018
So glad for all the healing, and all still to come!

Mary Ellen Erlandson|Apr 14, 2018
Thanks for the thorough update. Glad to hear the prognosis is good. You’re in good hands at the university. Prayers for continued healing both physically and emotionally.

Jeanne Eberhart|Apr 14, 2018
Stephanie, I enjoyed reading your detailed narrative and read it to Jerry, first because I had my own heart incident a couple of years ago; and second, because he’s worked in pharma for 25 years now. Amiodarone is said to be an extremely effective drug, even after all these years, but does, as you say, have some weird side effects. My robust 90-year-old aunt has been on it from time to time and she says the same thing.
I’ve been on Metroprolol since my valve replacement, and it does agree with me. I’m on 50mg. I remember Nancy having very low BP in the old days, so maybe this is a factor—or maybe not. It does take some doing to get my heart rate up when I exercise!
I like your idea about the PTSD and the EMDR. It’s so caring of you to think of that. I may research that myself.
I believe Nancy and I are FB friends, so please Message me anytime, either of you, to say hello or to ask about any drug Jerry might have worked with.
Love,
Jeanne

Su Smallen|Apr 14, 2018
Wow so much good. I know EMDR is effective. Any time you need me to come over, give me a call. Oh, maybe not today, sorry. I can’t even see my neighbors house at the moment (to be fair, his house is white). Lots of love -Su

Patti Pherson|Apr 14, 2018
Nancy,
Positive, life-affirming thoughts and prayers being said for your continued recovery and rest period. Funny how life has a way of kicking us in the arse to remind us to slow down, breathe deeply, hug wholeheartedly and enjoy each precious moment as a gift! YOU are a gift to the world, woman! And Stephanie, you are most definitely a gift to Nancy and those of us who love her!

Kathy Tegtmeyer Pak|Apr 15, 2018
Sorry I missed your visit to campus – would have loved the chance to give a real hug instead of this virtual one. Glad to know that you are back on the path to health. Kathy

Sveinung Skjesol|Apr 16, 2018
Well, now I’m crying 🙂 Thank you, Stephanie, for what looks like full disclosure, it is both comforting to comprehend the help you are receiving, professionally and in your network, and amazing to read about all of your well-advised strategies.
Bummer that Norway is bumped to another year, but we’ll cope!
I think you already thought about this, but I think that even for yourself, this documentation will be valuable. If you are like me (and you might just be, a little, those Hegge genes and all), you think now that you will remember all of these details forever. But you won’t.
See you!

Pilgrim Lutheran Church|Apr 16, 2018
Stephanie, thank you for your detailed report. Nancy, so glad you are better and have such great doctors! We missed both of you at the women’s retreat this weekend. Take care and looking forward to seeing you both.
Hugs, Lynn

Anne Sabo|Apr 17, 2018
Yes, thank you for updating us so well. When feeling so helpless and far away, I really appreciate being able to follow you both on Nancy’s way to full recovery and, for both of you, the processing of this hugely traumatic episode. It’s great to hear you’re getting such good care, being followed up carefully by professionals, and supported and helped by friends in the community. I did not know you were planning a trip to Norway this summer; what a bummer you’ll have to postpone it, but then I really look forward to seeing you when you do make it over here! Hope you’re having a lovely birthday celebration of LIFE and our special NANCY today! Love you!

Sunday Update

nancyaarsvold

Journal entry by Stephanie Fay

Good morning, everyone!

From Nancy’s rather small but wonderfully ordinary hospital room. They discharged her from the Cardiac ICU late yesterday.  Such good news and progress!

“The kids” are flying home this morning after a week of supporting Nancy in innumerable important and life-giving ways.  Time for them to return to work, naturally.  Our niece Tonya has been poised all week to fly out from Maryland at a moment’s notice — and so she will arrive PHX this evening.  She was an immeasurable help to me and to us in August of 2016 when Nancy had her last “event,” as we sometimes call it.  I’ve rented an AirBnB starting tomorrow.  That will be our “basecamp” here in Scottsdale, and the place where Nancy will go after discharge to get up and running again.

After spending quite a few nights in Nancy’s room, I will focus on being at the hospital during the day now as she works her way towards discharge.  Planning is fluid but we do have a framework that we are working with now.  Her electrophysiologist down here (Dr Zuwani) wants to see her in his office on the Monday or Tuesday after Easter.  Once Nancy’s gets the green light from him to travel and Nancy feels strong enough, we will fly home late next week.  I’ve booked first class tickets (insured!) on Delta for Friday, April 6th.  Very flexible on that timeframe however.  And I haven’t ruled out the possibility of flying home via private jet. My brother Brad is exploring those options.

The Team Nancy crew here has been amazing!  What can I say? There’s nothing like family.  Especially family like our families.  ere they are — oldest to youngest (as best I know! :-).  My brother-in-law Dave Kinnard, my sister Elaine Kinnard, Nancy’s sister Jennifer Kraemer, my brother Bradley Fay, my sister-in-law Lisa Fay, me, Nancy’s son Andreas Aarsold, Andreas’ girlfriend Greta Hanson, Nancy’s daughter Tina Aarsvold, and Tina’s spouse Jessica Aarsvold. Ok, “the kids” are definitely out of age sequence!  This intensity and continuity of immediate support is overwhelminig — I cry with gratitude pretty much every day over that.

My cousin Sonia Hegge Bar arrived from Fargo on Friday morning. Nancy and I had a long weekend planned with her, staying at an AirBnB near downtown Phoenix. She’s been a great comfort to me these past couple of days, too, and I was able to sleep long and well at our place last night and hope to do so again tonight.

The electrophysiologist group is calling the shots around Nancy’s care, led by Dr. Zuwani. He was the one who came to the Cardiac ICU last Sunday morning and problem solved until Nancy’s PVCs stopped, ending the Fiona frenzy of shocks. They haven’t seen ANY PVCs since late last Sunday. This is a very very good thing!!  Dr Zuwani is in close conversation with Nancy’s electrophysiologist back at the U of MN.  Dr. Roukoz will take over Nancy’s care once we are home. The possibility of an ablation to stop this premature beat is on the table. This is a decision Nancy will make in consultation with Dr. Roukoz after we get home. We have excellent rapport with Dr Roukoz, and one of the U of MN device nurses I have been in contact with assured me folks with these sorts of arrhythmias come from a three-state area to have these sorts of surgeries there.

Returning to Minnesota will also put Nancy back in the care of her regular cardiologist, Dr. Jason Bartos. He was a fellow at the U of MN when Nancy was in the hospital in 2016, and now he’s a practicing cardiologist in the U of MN Clinics.  We’ve seen him in clinic once — this past November, I think it was. We’ll be seeing more of him in the months ahead, I imagine. He’s everything we feel a doctor should be — knowledgeable, compassionate and utterly approachable. We are also looking forward to returning the oversight and care of Nancy’s device (as in Fiona) nurses at the U of MN. A wonderful group of 4 women who we’ve gotten to know more and more thru Fiona’s quarterly check-ups.

Coming out of 5 days on the respirator, Nancy has been a little confused at times. They call it ICU delirium. But all that seems to be clearing as she gets moving about. Moving to a regular cardiac unit helps as well, I’m told. The PTs and OTs are putting her thru her paces daily. From what I hear, these folks don’t take “I don’t want to” for an answer!  ery persuasive, very good coaches.

At least 1 if not 2 or more people from Team Nancy have been with Nancy nearly around the clock. Fortunately, both the ICU and this room have a rather comfortable recliner to sleep in. The Team has also given me some precious and essential time to R & R.  I’ve spent nearly 2 full days away from the hospital — but don’t ask me which days!  It’s all a bit of a blur. Ok, so it’s actually a total blur.  🙂

Some folks comment on how hard it must be to write on Caring Bridge. Not so for me.  Here’s what it does for me/us —

  • A written record of some of the blur for Nancy and I to read later on.
  • A place for you to cheer Nancy on!
  • Keeps family and friends in the loop with minimal effort and time on my part.
  • I am one to want to know what is going on. In turn it’s important to me to share what is going on with others.
  • The writing is cathartic somehow. Based on the length of this entry, I must have been due some of that!

Notice how I worked another list in there for Nancy?  Feeling pretty clever.

Nancy is snoozing calmly at the moment. The OT will be by today to give her a good workout, no doubt. And she’s going to get a shower later this afternoon!

It’s a beautiful day in the Arizona desert. It’s a beautiful day in Room 351 as well. Griff, the physical therapist, just arrived on the scene.

Thanks for your ongoing support!

Love, Nancy & Stephanie

 

Lori Ellertson|Mar 25, 2018
Thank you much for keeping us in the loop Steph! Nancy has a grand team of family and friends that got her through this! Love you! 💖💞💖

Laureen Schott-Jacobson|Mar 25, 2018
Good to hear that things are looking up. Still sending prayers.

Christine Hanson|Mar 25, 2018
So glad to hear about continued improvements. It’s amazing how family can carry you through stressful times. Thinking of you all. Chris

Gail Klemm|Mar 25, 2018
So, so happy with continuing good news! Thank you, Steph! I know how one day blurs into another, and have been so grateful for the support team – you both needed them! Prayers continue, including this morning at Trinity (one of the many Trinitys attended by Ellertsons in various locales.) After singing at two services – lots of “Hosannas” still in my head, so I will add another for Nancy and for you. Thank you for all of the information – it is cathartic, and it keeps everyone equally informed. That has been so appreciated. Sending love from southern CA.

Hanna Emerson|Mar 25, 2018
Very grateful for your updates, Steph! Love to you both!

Joan Haan|Mar 25, 2018
It’s sunny here, in St. Paul, a fitting day for Palm Sunday and the good reports (reporting).
Blessings and healing from our hearts to yours!
Joan & Phil
PS. It ‘s amazing grace all the support you are receiving from family! Grace and peace to all!

Tamara Holyk Crane|Mar 25, 2018
I read every entry you post. Thank you. Hugs, healing and Aloha to both of you and the crew. There’s no place like home! Wishing you a safe journey. 🌺

Denise Swanson|Mar 25, 2018
So happy to hear this great progress. Praying all the heart and device issues are addressed and your life goes back to “normal.”  Though I am a distant family friend from Nancy’s childhood and “relative,” following her progress and cheering with each corner she turns. Bless you Stephanie for writing and having strength to keep going. Prayers and love to you both.

Mary Beth Lake|Mar 25, 2018
After being away for a week, we can assure you both it is beginning to feel and look like spring is near in Mpls, rebirth! What a wonderful family you have😎. Excited for your return home; no more surfing 🏄‍♀️ on Mission Beach for a while though!!

Claudia Gordon|Mar 25, 2018
What a beautiful journal entry, Stephanie…..beautiful in content and beautifully written. The love in room 351 is spilling out all over this Palm Sunday. Prayers and peace to Nancy and Stephanie!

Anne Sabo|Mar 25, 2018
In crisis we come closer, or close again, and then even closer. ❤️❤️❤️ Love you. And thank you, for sharing and championing through. A lot of good news in this update, ❤️, and it feels good to be able to picture your hours and days over there, to feel closer with you as I hold you close in my heart. I’ve been keeping Lilly in the loop too. Hugs and kisses from her as well! 😘

Eric Schlotterbeck|Mar 25, 2018
Nancy and Steph, we are so pumped to hear how much progress you’ve made and also your plans to return home. Keep up the great work! Love to you both-

susan Donohue|Mar 25, 2018
Thank you for this detailed account, Stephanie. I’m glad it is cathartic. I had to look up ablation though! I am so thankful for the quality of care and experience Nancy is getting both here and in AZ. That comforts me so much, and you are such a good wife to juggle all the living details with the medical details and the emotional frenzy. Looking forward to squeezing you both when the time comes. love, love.

Nonny Smith|Mar 25, 2018
Thank you so much for writing so thoroughly about what is/has been happening. It is a win-win from the standpoint of me (and perhaps others) who long to know how it is all going, and who feel a bit helpless being so far away and wishing we could do more. Maybe the “writing makes it real” , or makes it into a coherent story for you, Stephanie, in much the same way that telling a story out loud does. It is a great relief to hear that Nancy is progressing, that you have such phenomenal family support, and that you can get some time for self-care. May the moment to moment journey go smoothly now. Blessings and love, and continued prayers come your way from here.

Melanie Ruda|Mar 25, 2018
So glad to hear about the continual improvements! Thanks for keeping us updated. We love you both.
Melanie and Katia

Su Smallen|Mar 25, 2018

  • I’m all for cathartic writing! (Note: not catheter writing.)
  • Steph you are a planning machine! Air bnb, plane tickets, age-ordering your family…wow. I can’t imagine what your tired self must feel like. I’m glad you’ve been getting more and better sleep.
  • Nancy, I’m so glad you have been sprung from ICU!
  • Speaking of sprung, it’s spring-y in MN. I bet you’ll find some perennials already poking up under dead leaves.
  • The deer have been coming to nap in my yard nearly every late night/early morning.
  • I’m looking forward to seeing you both, and to helping out.

Ann Dyellig|Mar 25, 2018
So happy to hear the news that Nancy is out of ICU! Yippee! I can feel your sense of calm thru your words and hope you get your bride out of the hospital really soon! Keep up the good, hard work, Nancy! You’ll be back home soon! Can’t wait! ♥️

M Rickard|Mar 25, 2018
Steph,
Lots of prayers and hugs to you and Nancy. So happy it is going well and all the wonderful medical staff and family support you have! Thanks for the updates.

Barbara Taylor|Mar 25, 2018
Thank you for taking the time to update us, Stephanie. This is cathartic for us too. We will be glad to have you home again when team Minnesota can kick into gear.

Barbara McCauley|Mar 25, 2018
Dear Stephanie – thank you for sharing all this wonderful news. Your writing skills are amazing, and love the lists! You and your beloved Nancy continue to be in the prayers of your Pilgrim family. We look forward to more good news, and to seeing both of your beautiful faces in MN in April. Sent from our thankful hearts!

Jeanne Huggins|Mar 25, 2018
Excellent news Steph! So happy for you both! ❤️

Sharon Hinz|Mar 25, 2018
Blessings to you both. Stephanie, thank you for caring so beautifully for Nancy!

Dana Whitford|Mar 25, 2018
Stephanie, your updates are so amazing. I really appreciate them. And even if I haven’t seen Nancy in a long time, she continues to remain special to me and I hope one day to meet you both out here on the west coast, where I can properly thank Nancy for all she did for me and hug you for all you do for her.

Abby Brogden|Mar 25, 2018
You go girls! Steph you write beautifully about what’s going on. So helpful to those of us who are far away physically but not spiritually. We are now back from Mexico and so look forward to seeing you back in MN. We hope to see you so soon!!! A & J

Kathy Tegtmeyer Pak|Mar 25, 2018
Delighted to read so much good news of healing. Wish you a peaceful week with reinforcements, time to rest, and a bright path to recovery.

Debra Taylor|Mar 25, 2018
Thank you for the thorough updates. I’m sure you will both be happy to get back home so Nancy can recuperate in comfort. Safe travels!

Kathy Olsufka|Mar 25, 2018
That’s wonderful that Nancy is progressing towards getting to be able to go home. Prayers that she will be able to fly on the 6th as hoped. Thanks so much for the updates. I am with you Nancy, I like bullet points also😉

Kristin and Jean Kristin and Jean|Mar 25, 2018
Love your updates. This one especially. Glad to hear Nancy moved to an ordinary room. Sending you healing love.

Heidi Dombek|Mar 25, 2018
So very blessed to get these updates from you Stephanie. The details keep us right there with you, and we are all hugging you both from afar. God be with you, and strengthen you and Nancy.

Kari Dorer|Mar 26, 2018
Thanks again for the update, Steph. SO great to read the word discharge, even if it is next week!

Gloria Betcher|Mar 26, 2018
I hope everything continues to head in the right direction for Nancy. The Team support sounds excellent and I’m sure you can use the help, Stephanie. Take care of the caregiver (you) and your spouse, and look forward to returning home after a more relaxing stay than you have had up til now in Scottsdale.–Still sending positive vibes and prayers–Gloria

Gail Merriam|Mar 26, 2018
Thanks for the update, Stephanie! It snowed here last night, so it’s a little bit more beautiful in Saint Paul right now. You can be grateful she is in sunny Arizona for this. Keep fighting the good fight! Take care of both yourselves.

Nadine sanders|Mar 26, 2018
Steph,
I add that your excellent writing skills (no doubt honed at that St Olaf place) make your updates easy to read. I am sure you would rather be at Pilgrim Lutheran Easter Sunday, but all the pilgrims will welcome u home when you get there. cheers nadine

Phyllis Zumach|Mar 27, 2018
You’ve written so many pieces of information in your most recent post … and we appreciate them all! So grateful for the progress Nancy is making. And now may it continue at an exponentially rapid rate!
Love and Hugs,
Phyllis and Allen